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Arielle Selya PhD's avatar

Thank you, Marc, for explaining why this is messaging is very misleading, despite being technically correct in a narrow sense.

There are many examples of this kind of misinformation from medical groups, as you point out. The most recent one that really bothered me is a paper published earlier this month by researchers from the American Cancer Society: https://pubmed.ncbi.nlm.nih.gov/42264521/

The paper finds that people who quit smoking by switching to e-cigs were more likely to relapse than those who used other methods. But the issue is they compared people who quit recently (note: e-cig users can essentially only be in this group) with people who quit decades ago before e-cigs were invented and, because they quit decades ago, are at no real risk of relapse. This is like saying: people who quit while owning a smartphone are more likely to relapse. The American Cancer Society authors should be aware of this issue, and if they're not, it doesn't reflect well on the ACS. Instead, their conclusion raises alarm about the "relapse risks with ENDS relative to NRT."

Either way - whether it's ignorance of basic conceptual issues or intentional spin - it is turning me, a scientist, into someone distrustful of medical recommendations. As David Sweanor https://substack.com/@davidsweanor973018 put it at GFN, "Do people say, 'the health authorities are wrong on vaping, but I trust them on everything else'?"

Roberto Sussman's avatar

I have had two lymphomas and 5 skin cancers (one very aggressive), therefore I have had a lot of interaction with medical doctors. Also, my body (heat to toes) has been scanned many times. When I first reported vaping around 2016 to doctors I saw for non-cancer issues (standard revisions, prostate, sugar levels, throat, lungs), I got a lot of warnings, but the doctors mostly automatically expressed the anti-vaping official stance that stems from authority (from the WHO downwards). So, I decided not to disclose my vaping. Scans and tests showed nothing (as they always did when I smoked). However, with my lymphoma in 2019 and the nasty skin cancer (epidermoid) in 2021, I thought I had to tell the oncologists who treated me (who literally save my life) that I vape. Curiously, and at a private level (knowing I am a physicist) they were receptive and understood that absence of combustion significantly decrease toxin exposure and thus risks. However, they remained ambivalent and recommended me to quit vaping. When I suggested them to invite to give a talk in the hospital ONLY about the physics/chemistry of aerosols, NOT A WORD on being less risky or any medical issue, just hard data from emissions. This was not well taken and conversation on vapes ceased. I understand them, they cannot counter and question a policy stance brought by authority, even if evidence from physics/chemistry is rock solid. The message I took home is that there might be quite a few medics (specially those treating patients) who have internalized the reality of THR, but feel the ecosystem is still not ripe.

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